A Project on
Quality of Life Development and Network Building on HIV/AIDS in Rayong through Holistic Approach
Jun 2003 – May 2006By
Camillian Social Centre Rayong
1/1 Soi Kiri, Huay Pong,
Rayong 21150, Thailand
Tel. (038) 685480, 691480
Fax. (038) 687480
E-mail:
cscrayon@loxinfo.co.th
A Project on
Quality of Life Development and Network Building on HIV/AIDS in Rayong through Holistic Approach
EXECUTIVE SUMMARY
Camillian Social Centre Rayong
CSC in Rayong is a social centre dedicated to prevention of HIV infections and to the care of HIV/AIDS patients and people and orphans living with HIV/AIDS who are poor, abandoned or rejected. CSC provides prevention training for students and young factory workers, community members and civil servants. It operates a palliative care unit for HIV/AIDS patients and accommodates PLWHA. It also provides a dormitory and classes for AIDS and affected orphans.
Past Experience and Achievements in AIDS work
CSC gave prevention training to over 150 organisations and 3,500 trainees. CSC has encouraged and supported 8 factories, 9 schools and 3 local communities to develop their own action plans for the ongoing prevention of HIV/AIDS. It held planning meeting with leaders of 6 local communities. It has publishes a newsletter with 500 copies per issue. It has organised a celebration of World AIDS Day every year for 500
The eastern network of people living with HIV/AIDS at present has 28 local associations with a total membership of over 1,400 people in all the seven provinces of the eastern region. It pushed for the Government Pharmaceutical Organisation to manufacture more anti-retroviral medicines, Department of Communicable Disease Control to help PLWHA to have greater access to anti-retroviral medicine, and Ministry of Public Health to include medical treatment of opportunistic infections in PLWHA in its 30 Baht medical scheme.
In the seven years up to the 31st of December 2002, CSC has provided care for 753 persons living with HIV/AIDS. There were 455 male PLWHA and 298 female PLWHA. Of this total, 401 have died, 265 have gone back to live with their families after rehabilitation and 87 are presently still alive and live at CSC.
Current Situation on AIDS in Thailand and in Rayong
It is estimated that each year over 50,000 Thai people will die because of AIDS. Over 90% of deaths because of AIDS will be people at the age of 20-44 years. Thailand has been affected by the HIV/AIDS since 1984. Relevant figures show that over 1 million Thai people are infected with HIV.
Infection has now spread to students and members of the young working population, who have risk behaviours.
Situation in Rayong
Since 1994, there are over 1,000 cases of new AIDS patients per year. The highest number recorded was 1,172 new cases in 1998. As of 31 August 2002, the cumulative number of people living with HIV/AIDS is 8,514 cases. The highest risk factor is sexual relations at 89.3%. The group with the highest rate of sickness is those who are 25-29 years old.
Approach
CSC adopts a holistic approach in its work, covering all aspects and dimensions of HIV/AIDS including the physical, mental, spiritual, political, social, cultural and economic dimensions.
Sustainability
It is essential that all stakeholders be actively and sincerely involved to promote and facilitate sustainability.
Gender Role
Empowerment of women is essential and indispensable. CSC supports women as one of the main actors and participants in its prevention program, networking and organisation, palliative care, counselling and care of HIV/AIDS orphans and affected children.
Target Groups
1,200 workers, students and community members per year will get prevention training and about 3,000 people more will benefit from this program. We care for 90 PLWHA. We will care for 30 AIDS and affected orphans. About 1,400 people living with HIV/AIDS are members of local associations of PLWHA, and 5,200 people more and all PLWHA will benefit from the advocacy of the Eastern Network of PLWHA.
ACTIVITY
Strategy 1: Develop a training centre at CSC Rayong
Strategy 2: Develop a network of people, communities and organisations to participate in the prevention of HIV/AIDS prevention.
Strategy 3: Enable communities and organisations to formulate an action plan to curb the HIV/AIDS pandemic within their spheres of influence
Strategy 4: Monitor the short and long term impacts of the training on a regular basis.
Process
Activities
Strategy 1: Empower local associations and the network in building capacity of people living with HIV/AIDS.
Strategy 2: Policy-Oriented Advocacy
Strategy 3: Promotion of HIV/AIDS Problems in Local Communities
Activities
CSC has accommodation for fifteen PLWHA and a palliative care unit with a capacity of 8 beds for the helpless terminal patients. CSC can accommodate about 60 PLWHA. PLWHA who stay at the Centre take part in the prevention training by sharing their experience to trainees or visitors that come to CSC. Those who have stayed at CSC for two weeks will be sent back to their homes and communities after receiving counselling and they are willing to go back.
CSC childcare centre now cares for 30 children. They are all from very poor families; some were rejected and/or abandoned, and eight of these children have died. They are provided with literacy classes.
Activities
5. Staff Training and Monitoring
Budgeted Expenses for One Year (June 2003-May 2004)
Quality of Life Development through HIV/AIDS Prevention 1,539,280
Quality of Life Development through HIV/AIDS Network
2,311,000Palliative Care of Adults
3,277,200Education for AIDS Orphans and Affected Children
4,055,740Monitoring and Staff Development
439,800Total 11,623,520 Baht
Other Contributions = 5,590,000 Baht
Requested from Caritas Switzerland = 6,033,520 Baht
= US$
Budget for the second and third year will increase 3% per year.
A Project on
Quality of Life Development and Network Building on HIV/AIDS in Rayong through Holistic Approach
Quality of Life Development and Network Building on HIV/AIDSProject Title :
in Rayong through Holistic Approach
Duration : Three years from June 2003 – May 2006
Project Holder : Camillian Social Centre Rayong
Contact Person : Fr. Giovanni Contarin
Postal Address : 1/1 Soi Kiri, Huay Pong, Rayong 21150, Thailand
Tel. (038) 685480, 691480
Fax. (038) 687480
E-mail: cscrayon@loxinfo.co.th
PROJECT DESCRIPTION
CSC in Rayong is a social centre dedicated to prevention of HIV infections and to the care of HIV/AIDS patients in their terminal stage and people and orphans living with HIV/AIDS. These people are poor, abandoned or rejected. CSC provides training sessions for students and young factory workers, community members and civil servants on HIV/AIDS infections and how to prevent themselves from this fatal disease. It operates a palliative care unit for HIV/AIDS patients who are helpless and in their terminal stage of life. The centre accommodates PLWHA, both men and women, who can still help themselves. It also provides a dormitory and classes for orphans whose parents died of AIDS and children that have been affected by HIV/AIDS.
The Camillian Social Centre Rayong is
part of St. Camillus Foundation. The Foundation works, through its various
social centres, in healthcare at Banpong, Ratchaburi, the care of lepers in
Prachinburi, the poor elderly in Sampran and Chantaburi, in healthcare with
the rural poor in Kanchanaburi and Suanpung in Ratchaburi, the poor street
people in Thanyaburi, the ethnic children in Chiangrai, and people living with
HIV/AIDS in Rayong. All of them are poor and marginalised people, young and
old. The St. Camillus Foundation of Thailand was registered as a legal entity
in 1973. Its purpose is to implement more effective charitable and welfare
activities for the sick, poor and the marginalised in Thai society.
On Prevention In the past years, CSC instituted programs and activities
on assistance and care of AIDS patients. CSC realised that there was an urgent
need for HIV/AIDS prevention. Therefore, it has developed an AIDS prevention
project with its target groups through a participatory approach. In this
prevention program, it has been trying to raise awareness of the values of
human sexuality, sexual inequality related to HIV/AIDS and moral values. It
also promoted the sharing of experiences and ideas and to develop the capacity
to analyse one’s own risk behaviours. However, due to delicacy and
complexity of behaviours of the issue, it needs profound understanding and
positive and creative attitudes that are relevant to Thai way of life to
foster change towards proper behaviours. Therefore, peer educators and action
plan in particular environment with follow-up of peer educators or leaders in
their extension are essential to be carried on, so that these prevention
activities will go on although the project is completed. Given the above commitment in mind, CSC Rayong has worked
with the public and private sectors to launch campaigns promoting proper
knowledge and understanding on HIV/AIDS by organising and presenting 6-8
monthly sessions of HIV/AIDS prevention training programs to various groups
around the area. In the public sector, CSC collaborated with the
provincial public health office of Rayong and the office of labour welfare and
protection of Rayong in giving training on prevention, care and counselling to
workers and employees in business enterprises and factories. It provided
resource persons to Mabtapud Municipality to give training to housewives,
leaders and committee members of local communities. It gave training to
personnel of Mabtapud Municipality, police of Huay Pong and Mabtapud
Sub-District Police Stations, Ban Chang, Ban Khai, Pluakdaeng and Muang
District Stations. In the private sector, CSC gave prevention training
to over 150 organisations and 3,500 trainees. These were workers and employees
in business enterprises (food shops, companies and factories), educational
institutions and local communities in Rayong and neighbouring provinces. CSC has encouraged and supported 8 factories, 9 schools and
3 local communities to develop their own action plans for the ongoing
prevention of HIV/AIDS. CSC adopts a participatory approach in its work and
always supports all stakeholders in planning, implementation and follow-up of
the prevention training and action plan. In the past, it held planning
meetings with representatives of 6 companies located in different industrial
estates in Rayong. It also held planning meeting with leaders of 6 local
communities in Muang District of Rayong. CSC publishes a prevention newsletter in a simple format to
disseminate and update information on the HIV/AIDS situation at national and
provincial level, government policies. Contents of the newsletter include
prevention of HIV/AIDS, articles on human dignity and sexuality, quality of
life. This newsletter aims at raising the awareness of prevention and
promoting positive attitudes in PLWHA. It publishes over 500 copies of each
issue. These are distributed to leaders of its target groups and interested
people, as well as all related state agencies. Every year at the end of November or beginning of December,
CSC organises a celebration on World AIDS Day. Normally, it falls on December
1, but for the convenience of our audience who are students and workers, the
celebration takes place on a weekday closest to December 1, which has been
decided by all stakeholders. CSC promotes active participation of the audience
in all the activities. On that day, there will be questions and answers on
AIDS, a drawing contest, a speech contest, and a debate. The theme for these
activities will be taken from the UNAIDS theme of the current World AIDS Day,
which will promote prevention and living together with HIV/AIDS patients.
Target groups are workers from business enterprises, students from educational
institutions, community members, people in general as well as PLWHA. Each
year, over 500 people take part in this celebration, which takes place at CSC. CSC always collaborates with various organisations, both
public and private, to support them to initiate prevention activities in their
organisations and to build network with them in this effort. In the past, it
established and strengthened a network of enterprises, educational
institutions and local communities in the concerted action to prevent HIV/AIDS
prevention. On Network of People Living with HIV/AIDS The eastern network of people living with HIV/AIDS was set
up in 1999. Initially, there were only 9 local associations of PLWHA. Through
the diligence of the field workers and the leaders of the network, at present
there are 28 local associations with a total membership of over 1,400 people
in all the seven provinces of the eastern region. The network develops its own
work and defines its own tasks and roles. This has helped to further empower
and strengthen the network. It has played an active role in the Thai PLWHA
network. This is a national network of PLWHA that has been advocating and
proposing guidelines and direction to the government to push Ministry of
Public Health to develop a better system of care of PLWHA. For example, it
pushed for the Government Pharmaceutical Organisation to manufacture more
anti-retroviral medicines. It pushed Department of Communicable Disease
Control to help PLWHA all across the country to have greater access to medical
treatment with anti-retroviral medicine. It also pushed Ministry of Public
Health to include medical treatment of opportunistic infections in PLWHA in
its 30 Baht medical scheme. In addition, it has played active part in
demanding for termination of patents on medicines, like the case of DDI.
Locally, it helped organise buyers’ club to buy cheaper anti-retroviral
medicines with ongoing and systematic monitoring and counselling so that PLWHA
would have greater access to anti-retroviral medicines. The network has organised training activities to provide knowledge and
develop capacity and skill of leaders to strengthen local associations of
PLWHA. These training topics include knowledge on HIV/AIDS, healthcare,
counselling, home visits, and group management. It also organised platforms
for the sharing and exchanging of ideas and experiences with PLWHA, HIV/AIDS
NGOs, and public health agencies. It has helped develop network organisations
through personnel development of its committee members, personnel and leaders,
so that they can effectively strengthen and empower local associations to work
as a network with common aims. In the past years, it has given greater
co-operation to its partners by taking part in their activities, sharing of
information and mutual aid. On care of PLWHA, people with HIV and orphans and affected children
CSC has been giving accommodation, assistance, counselling and rehabilitation to poor, rejected and abandoned PLWHA. In the seven years up to the 31st of December 2002, CSC has provided care for 753 persons living with HIV/AIDS or that have been directly affected by HIV/AIDS. The age distribution of these people is as follows:
|
>10 years |
11 – 20 years |
21 – 30 years |
31 – 40 years |
< 41 years |
|
57 |
44 |
303 |
271 |
78 |
|
8% |
6% |
40% |
36% |
10% |
There were 455 male PLWHA and 298 female PLWHA. Of this total, 401 have died, 265 have gone back to live with their families after rehabilitation and 87 are presently still alive and live at CSC. As seen in the graph above, the majority of the persons being infected are in their prime working years.
The Public Health Ministry of Thailand reports that the rate of HIV infection is very critical especially among factory workers, injecting drug users, homosexual people, foreign workers, freelance professionals and pregnant women. It is estimated that each year over 50,000 Thai people will die because of symptoms related to AIDS. Over 90% of deaths because of AIDS will be people at the working age of 20-44 years old, who are the breadwinners of families.
Thailand has been affected by the HIV/AIDS pandemic since the end of 1984. Relevant figures show that over 1 million Thai people are infected with HIV. Recently in the 8th national seminar on AIDS held in 2001, the Department of Communicable Disease Control reported that in 2000 there were 984,000 people who were HIV positive. They were 29,000 new infections and 55,000 symptomatic patients. Over 289,000 AIDS patients have died. Among them, 90% were 20-44 years old, or the major working population. When we compare new infections in 2000 with those in 1991 (143,000 cases/year), we can see a decrease of 20%. One of the contributing factors to this decrease is the measure taken on prevention of new infection in risk groups under surveillance.
Although the situation of AIDS infection has calmed down a bit, it is still critical since the infection has now spread to the public, especial students and members of the young working population. These young people still have risk behaviours. It is found that the infection rate in people at the age of 15-24 has gone up 60%.
Situation in Eastern Region
The eastern region of Thailand has the highest rate of infection. Several factors contribute to this, among them: (a) a high number of persons that exhibit risk behaviour, (b) the province of Rayong has been chosen for the promotion of industrial estates. There is a large army of migrant workers from other regions that come to work in the factories. The rapid economic growth spawns the establishment of entertainment places to respond to needs of the people. Most of factory workers are in the younger age brackets and do not have clear marital status. They spend most of their time in their work and the pursuit of pleasure and generally lack information on other aspects of life.
The local communities still have a negative attitude toward PLWHA. They think that the PLWHA should be separated from their communities and put in a special place designated to them. Therefore, the PLWHA dare not disclose their status to their families and society. The rate of new infections in the eastern region is very high, ranking on the top of the chart of the country.
Situation in Rayong
Rayong is a province situated in the eastern region of Thailand. It has been chosen as a hub for industrial development in the region. Over the last decade, it has seen rapid industrial and economic growth. There are several industrial estates and a large army of workers, mainly young people coming from other provinces and foreigners. This province has a big fishing industry and many fruit plantations. It also has many tourist attractions, such as famous beaches and resort islands.
AIDS and STD Control Desk in Rayong Provincial Office of Public Health reports that since 1994 there are over 1,000 cases of new AIDS patients per year. The highest number recorded was 1,172 new cases in 1998. As of 31 August 2002, the cumulative number of people living with HIV/AIDS is 8,514 cases. They are 6,174 PLWHA and 2,340 symptomatic patients. There have been 1,869 deaths, which is 22% of the group. The highest risk factor is sexual relations at 89.3%. 54.6% of PLWHA are married people. The ratio between men and women is 2.7:1. The group with the highest rate of sickness is those who are 25-29 years old. Among them, 65.1% are in the working population, followed by farmers at 6.9%, traders at 4.2%, housewives at 3.7%, fishery workers at 3.1% and civil servants at 2.4%. There is also significant spread from injecting drug users to other population groups in communities, families, housewives and infants.
Current Situation on AIDS Related Problems
Each year, there will be new infections and about 55,000 people will gradually get opportunistic infections due to their low immune system. The national AIDS prevention and solution plan for 2003-2006 requests co-operation from all state agencies, private sector, religious organisations and PLWHA network to help prevent and relieve the suffering of Thai people from HIV/AIDS. It is not only a national campaign launched in the country, but also asks technical assistance and financial support from foreign agencies. Many parties take active parts in reducing the number of new infections, but the crisis of high infection rates still exists.
In the Thai eastern region in particular, the factors accelerating spread of HIV/AIDS include its location of large and small-scale industries, migrant workers and foreign workers. In addition, it is also a world famous tourist attraction, drawing large number of tourists. This situation brings about diversity in the society and a superficial lifestyle. Factual and updated information on HIV/AIDS problems are not disseminated to every corner of society. People are seriously not concerned to take care of their health. These problems or weaknesses should be tackled at all levels. All parties concerned, be they state agencies, AIDS NGOs, community organisations and PLWHA at the national, regional and local levels, especially PLWHA are significant agents in helping to a certain degree to reduce new infections.
State agencies and AIDS NGOs have helped launched campaign on AIDS prevention, but the result is not satisfactory. The eastern network of PLWHA also takes part in helping reduce new infections. It tries to support organisation of local associations of PLWHAs to promote proper understanding are to raise awareness on responsibility toward society by not spreading the virus. It also disseminates information on healthcare, physically, mentally and spiritually, and how to live together in community and society. This is one way to help raise awareness on familial fidelity, generosity and care on happy and safe living.
Economic and social problems
Economic and social development in the past was focused on development of material, technology, communication, and infrastructures leading to urbanisation. This is reflected in the growth and modernity of the country. Yet, there is no human development strategy in Thai society. As a result, Thai society clearly sees a widening gap between the rich and the poor. Human beings remain lacking development in their spiritual, physical and social dimensions, resulting in a weakening foundation of Thai society. This situation favours the infection and spread of HIV/AIDS, and also drug addiction and crimes. The solution is to turn back to human development. Clear development goal should be defined in empowerment of society with people of all genders, ages, professions and status as the centre of this development. It should also aim at raising the awareness and co-responsibility in society, which will be the driving force in preventing or reducing problems.
Attitudes
We have to admit that people living with HIV/AIDS are feeling rejected by their local communities. However, this situation is showing a certain degree of improvement. Some communities now accept and live with PLWHA. However, this does not imply that all communities have adopted this attitude. The eastern network realises this situation and tries to promote proper understanding gradually with smaller groups, be it families and colleagues. This method has seen some successes as well as failures depending on several factors. The most important factor is the thinking, which is a personal right. The stigma of HIV/AIDS, its frightful characteristics and the discrimination has been around for a long time without any clear reason or explanation. Therefore, campaign in this regard encounters a lot of obstacles. It takes time to change negative attitudes in the minds of each individual.
Impacts of AIDS
From the experience, PLWHAs suffer many indignities, such as the violation of their human rights by state officials and community members. They do not get proper health service and are discriminated against. They are dismissed from their jobs although they are still strong enough to do the work. They are discriminated against in ordination as Buddhist monks or are obliged to have blood checks when applying for jobs. These violations yield adverse effects on their spirit. Because PLWHAs are affected by stress and confused, their health deteriorates sooner. Their families and relatives are also discriminated against by not being allowed to participate in community and social activities.
Human rights are the matter that most people in Thailand do not know or understand well. Sometimes, a violation of another’s rights is carried out without being aware that it is a violation, or the violated do not even realise that they have basic rights provided by law. Therefore, adverse impacts brought about by HIV/AIDS are not addressed and the law is not enforced to truly protect the rights.
Lack of participation of community in care and prevention
Generally, the situation of problems created by AIDS is not tackled or improved because of lack of systematic participation of PLWHAs, community and public sector. Each party does its work alone. The Public sector gives priority to its work while the private sector also does its own work. Local associations also do their own work. Therefore, prevention outputs, community-based care and campaigns to disseminate knowledge and understanding on living together are not satisfactory.
Access to OI and ARV Medicines
In Thailand, PLWHA die sooner than they should because of the lack of access to medical care. There is also lack of information on healthcare and different opportunistic infection. The numbers that have access to Anti Retroviral (ARV) medicines is very small. ARV medicines are expensive and medical doctors do not want to give medical treatment to PLWHA, although opportunistic infections can be cured and ARV medicines can stop the multiplication of the virus. Therefore, PLWHA fall sick very fast.
PLWHA lack bargaining power
PLWHA do not take part in community activities as they should due to their own limitations. They dare not disclose themselves for fear of discrimination and rejection and the adverse impact on their family and current jobs. Therefore, the proposition and direction to address the problems and reduce impacts cannot be done easily because the PLWHA face the problems directly. Society in general still believes that the PLWHA do not have any capabilities. Therefore, their human dignity is not respected, hence lack of bargaining power in society.
Local associations are not strong
In working with local associations of PLWHA in the eastern region the factors that do not empower these local associations. There are health problems in leaders and members. The rate of turnover is very high due to weak health and death. PLWHAs dare not disclose themselves and joining an association is limited for fear that others will know that they are HIV positive. In addition, public health personnel do not co-operate. If they take part in the association, they will try to dominate the PLWHA thinking. They have authority and do have not trust in the local PLWHA associations of. Most members of local associations are from grassroots level or are marginalised persons. There is little chance that well educated and well-off people will join local PLWHA associations as members.
To help alleviate the situation people living with HIV/AIDS (PLWHA) and those affected by HIV/AIDS the Camillian Social Centre of Rayong (CSC) adopted the following objectives:
To promote HIV/AIDS prevention through training, action plans and network building.
To protect and advocate for the rights of persons living with HIV/AIDS (PLWHA)
To provide community support, and build up a network of PLWHA
To co-operate with state agencies and NGOs in the eastern region of Thailand.
To help reduce the pain of the poor and abandoned PLWHA
To prove palliative care to the needy PLWHA in the eastern region
To help HIV/AIDS orphans to get medical care and education, and
To support children affected by HIV/AIDS.
It was observed over several years that most of the effort expended on AIDS by other agencies was in specialised areas. Three years ago, CSC initiated an integrated program on AIDS work: prevention, PLWHA networking, palliative care and care of orphans whose parents have died of AIDS or children that are HIV positive and children that have been affected by the virus. The current holistic approach covers all aspects and dimensions of HIV/AIDS in its overall program including the physical, mental, spiritual, political, social, cultural and economic dimensions of HIV/AIDS. This approach is very important because CSC is working with "People", not a "Sickness". Because of this, it gives equal priority to prevention, care, counselling, and network building. It invites the participation of all stakeholders to get involved in human rights issues, public policies and advocacy. It also enlists the co-operation of adults and children to treat PLWHA with compassion and allow them to live in human dignity.
CSC is aware that the work on HIV/AIDS must be sustainable so that solutions to this problem are effective, efficient and long lasting. It is essential that all stakeholders be actively and sincerely involved in the work on HIV/AIDS. CSC will develop an action plan by the stakeholders to promote and facilitate sustainability. This action plan will include networking among them, training and formation of peer educators and peer groups, and PLWHA leaders. It means organising local associations of PLWHA, increasing the knowledge of its human resources, and regularly monitor and evaluate the programs.
The people that we will try to reach are the students and young factory
workers in Rayong and the other eastern provinces. We will train 1,200
workers, students and community members per year as the primary beneficiaries.
It is estimated that 3,000 people who are friends, colleagues and family
members of the primary beneficiaries will benefit from this program. At any
given time we can care for 90 PLWHA that are poor, homeless, abandoned,
rejected and who require medical care. Presently we have the capability and
capacity to care for 30 children that are orphans living with HIV/AIDS or are
children affected by HIV/AIDS. We will morally and if need be financially
support PLWHA staying at home and the families that are directly affected.
Presently this includes 1,400 people living with HIV/AIDS who are members of
local associations of PLWHA, and 5,200 people who are their family members,
relatives and friends. People living with HIV/AIDS all across the country will
benefit from the advocacy of the Eastern Network of PLWHA. ACTIVITY
Background Given the current situation on the spread of HIV/AIDS and its effect on the
young working population, CSC Rayong realises that, it is very necessary and
urgent to promote and extend prevention activities. The core prevention
activities are (a) a learning process on HIV/AIDS prevention, (b) the
implementation of an action plan on prevention by young people (workers,
employees, students) and (c) the organisation of young people in a network to
disseminate the information on HIV/AIDS. A concerted effort on HIV/AIDS
prevention requires the co-operation and collaboration of the business
enterprises, schools, local communities and concerned public agencies. It is
also necessary to co-operate with other private organisations working on
HIV/AIDS and the PLWHA network and local associations.
Goal
The goal of the prevention program is to empower individuals, families and communities on how to prevent HIV/AIDS and to increase the capabilities of everyone to find solutions to the HIV/AIDS problems that will lead to a better quality of life.
Development ObjectivesOperational Strategies
The following strategies will be implemented to achieve the above goal:
Strategy 1: Develop a training centre at CSC Rayong
Strategy 2: Develop a network of people, communities and organisations to participate in the prevention of HIV/AIDS prevention.
Strategy 3: Enable communities and organisations to formulate an action plan to curb the HIV/AIDS pandemic within their spheres of influence
Strategy 4: Monitor the short and long term impacts of the training on a regular basis.
The effective implementation of the above operational strategies also depends on the following factors: communication, sexuality, and peer groups
Communication
Many problems are caused by lack of poor communication. Being able to have good communications between a husband and wife will promote better understanding and will enable young people to talk and ask their parents questions related to sexuality. The main aim of integrating communication topics in HIV/AIDS prevention training is to help all trainees to use the proper communication for the situation, especially during communications on sex. Therefore, trainees learn and practice communication skills. Communication is very important for the groups who get prevention training, as they are then able to extend their knowledge and understanding of HIV/AIDS to their friends, colleagues, families and community members. Communication that leads to the sharing of knowledge, experience and opinions among each other is an efficient method of learning about HIV/AIDS.
Sexuality
Generally, in Thailand, open conversations on sex are unacceptable and impolite as they imply improper desire for sex. In their thinking, improper desire may yield unintentional adverse effects like unwanted pregnancies, sexually transmitted diseases (STD), or HIV infections. However, over 80% of HIV/AIDS infections are caused by sexual relationships. Therefore, the knowledge and understanding of sexuality in relation to HIV/AIDS are essential elements of the prevention training. This training stresses the important issues and links them to other training topics, such as anatomy and explanation on the means of infection in men and women. Topics include the authentic values of men and women, the benefits of marital fidelity and the proper use of a condom. This should raise the awareness of the participants and instil proper attitudes on self-prevention in sexual relations.
Peer to Peer Education
Peer to peer education is a proven and effective method of communication that gets the message to the intended receiver. Trainees are made to understand and realise the importance of self-prevention from HIV infection. There must always be a motivator to foster change towards proper and safe behaviour in relationships. The best motivator is a friend or peer as they can communicate on the same level with trust. The opportunities for conversation are more numerous. Our prevention training stresses this method as an effective and concrete method of communication. It must also include methods and ongoing activity with regular monitoring for long-term result.
Action Plan
To monitor and ensure that the prevention program is sustainable CSC will foster and facilitate peer groups to implement common prevention activities through an action plan. This action plan will be a sign of commitment of the target groups and an instrument for monitoring and follow-up. CSC will support these action plans by providing the necessary knowledge, updated information and the latest news on HIV/AIDS and the behaviours that put people at risk. The action plans will be implemented in business enterprises, educational institutions and local.
Strategy 1: Build capacity of individuals, families and communities in the prevention of AIDS infection by promoting proper understanding, knowledge and raising awareness on HIV/AIDS to develop quality of life, promote human dignity and human rights.
This strategy will focus on capacity building, promotion of participation and co-responsibility to raise awareness and develop proper life skill to prevent HIV/AIDS infection.
Specific Objectives
Process
The prevention team will approach decision-makers of business enterprises, school administrators and formal leaders of local communities to the prevalence of HIV/AIDS and its current situation at national, regional and provincial levels, its seriousness, population groups with highest infection rates and risk behaviours. The team will also discuss possible immediate impacts on business enterprises, schools and local communities. In particular, business enterprises will be heavily affected if their key people are infected, which is very possible. The prevention team will finally discuss with these decision-makers that prevention of these impacts and infection is possible and can be done by their business enterprises, schools and communities. The team will encourage and support them to initiate action plan on HIV/AIDS prevention in their immediate environment, which will ultimately and directly benefit them if their people are aware of this serious problem of AIDS and avoid risk behaviours.
CSC chooses to approach decision-makers in business enterprises in Rayong and neighbouring provinces because the highest rate of HIV infection is found in the young working population and so prevention in them is very crucial, and because of the highest HIV/AIDS prevalence in the province and the eastern region.
CSC also chooses to approach school administrators because the rate of new infections is rising at an alarming rate in secondary and vocational students. Therefore, awareness raising and dissemination of knowledge on HIV/AIDS are very urgent.
Local communities play important roles in the context of AIDS prevention, since they are the immediate settings of the people who are easily exposed to risk environment. Their role in prevention and dissemination of knowledge is very essential and indispensable.
The prevention team will also present a prevention-training program offered by CSC, as well as inviting them to select 25 members of their organisations (workers, employees, executive personnel, students and community members) for prevention training.
In this way, all parties will participate in the prevention program by initiating action plans and attending prevention training. Their participation and action plans will also be helpful for monitoring and evaluation as well as learning problems and obstacles arising in the course of implementation of their action plans which need to be urgently addressed.
CSC Rayong will organise one day program of prevention training with starting 9.00 a.m. The training will take place at CSC Rayong as the base for training of its target group. CSC will take about 25 trainees (workers, teenage students and community members) per group, which is a manageable size and it is more effective for sharing and learning.
The training will provide knowledge and understanding on HIV/AIDS. The training adopts a participatory and holistic approach. For example, it will organise workshops so that all trainees can take part in discussion and sharing of opinions on an equal basis. To facilitate participatory approach, CSC will adopt card methods and propose topics for discussion. These topics will be related to knowledge that the training would like to present to the trainees, and will be proposed by raising questions. This will be helpful for the trainees to think. In addition, CSC will apply a role-play as part of this learning process, which will help the trainees to see realities and can do analysis on HIV/AIDS to get a clearer picture.
At the end of the training, CSC Rayong will award a certificate to each trainee.
CSC will develop peer educators from among the target groups who are trainees in a one-day training at CSC. It will support those trainees who have shown capability and willingness, as well as having good human relationship, trainer and leadership qualities to take up the role of peer educators. It will train and support these peer educators through a method of peer support group, organising local groups or associations, which will regularly carry out activities on AIDS prevention.
It will also encourage and support each group of trainees
to develop action plans on HIV/AIDS. Their action plans should basically aim
at initiating prevention campaigns and activities among their fellow workers
or students or community members. It should include the dissemination of
knowledge and awareness raising to others as well as being leaders in
campaigns on HIV/AIDS prevention. Through these peer educators and groups
and action plan, HIV/AIDS prevention will be extended further to their
immediate friends and family members.
To be sustainable in HIV/AIDS prevention, CSC will foster and facilitate peer groups to implement common prevention activities through action plans. These action plans will be signs of commitment of target groups and instruments for monitoring and follow-up. CSC will support these action plans by providing the necessary knowledge, updated information and latest news on HIV/AIDS and risk behaviours to business enterprises, educational institutions and local communities to implement their action plans more effectively and efficiently. This action plan is also an important instrument for monitoring and follow-up, in which CSC will learn problems and needs of peer groups in business enterprises, schools and local communities, which are helpful for it to provide necessary support. The action plan is also an instrument to ensure sustainability of HIV/AIDS prevention at grassroots level, which is also measurable and verifiable.
Another factor that is very essential in HIV/AIDS prevention is networking among related organisations. Prevention must be a concerted action and, therefore, needs co-operation from various concerned parties/stakeholders, be they workers, students, community leaders, business enterprises, schools, local communities, state agencies and other private organisations. CSC will support the networking of different peer groups and various sectors.
Activities
Target group
One-Day Training:
Target group
Strategy 2: Promote network of people, communities and organisations in the prevention of HIV/AIDS to foster partnership in the sustainable prevention and solution of HIV/AIDS problems by mutual planning on project operation and implementation of activities in their organisations/groups, as well as sharing of information and news.
Objectives
Process
Activities
Target Groups
Strategy 3: Develop a centre of learning at CSC Rayong
a source of living knowledge garnered through a process of actual work at CSC Rayong, such as palliative care. It is an essential source for those who want to learn real life and practise the care of patients with HIV/AIDS, guidelines on activities for the PLWHA and counselling. This will include the physical work and the spiritual aspect, as well as caring for affected orphans and the eastern network of people living with HIV/AIDS. This centre of learning provides a library of life in which volunteers and interested people in the country and from abroad can come on study trips, exposures and short-term internships. The target groups will be introduced to PLWHA so that they will have a chance to talk and share experience and counselling in prevention in order to build capacity and empower families and communities.CSC is
Process
Activity
Target Groups
Overall Target Groups of this Program
Main Target Groups
Secondary Target Groups
Expectations
It is expected that this program will get good co-operation from partners and they will participate in this program in the following manner.
Background
In the majority of the areas, people living with HIV/AIDS (PLWHA) suffer discrimination, as well as being stigmatised and marginalised. To own up to being a PLWHA is to leave yourself open to losing your job, being ostracised from your family and being banished from the village. It’s for these reasons that CSC Rayong fully supports that PLWHA get organised for mutual aid and to protect their rights as Thai citizens. As human beings, they deserve to be treated with human dignity. The eastern network of PLWHA is completely managed and controlled by PLWHA with an assembly of all the members as the supreme body and a committee as its executive arm. Committee members are representatives of the local associations of PLWHA from each of the seven eastern provinces. As of today, the network has 28 local associations and a total membership of 1,400 members. The network co-ordinators and local leaders set up the local associations.
Goal
The eastern network for PLWHA has determined to achieve the following goals:
Field Areas
The seven eastern provinces of Thailand form the field area, in particular: Rayong, Chantaburi, Trad, Cholburi, Chachoengsao, Prachinburi and Srakaew.
Target Group
Direct Target Groups
Indirect Target Groups
Operational Strategies
Strategy 1: Empower local associations and the network in building capacity of people living with HIV/AIDS.
The eastern network of people living with HIV/AIDS is an organisation of people coming together to open an avenue for mutual support with an aim to improve quality of life that is proper to human dignity. It takes initiatives to have access to medical treatment and accurate information, which will help the members to understand the condition of immuno-defficiency caused by HIV, as well as creating mutual understanding with their relatives and friends so that they can live together happily. It also acts as an agent among concerned organisations in the solution of HIV/AIDS directly with the infected people. This operation will develop a process and direction of development in caring and assisting PLWHA.
Part of the empowerment of local associations and their network is to develop leaders in knowledge and capacity so that they can take part effectively and actively in the assistance to PLWHA. The process adopted in training/meeting is a participatory approach in which participants take active part in planning and implementing activities. This participation is conducive to a mutual process of thinking, planning and implementation. Topics to be dealt with in this process will keep in mind outputs that can respond to the solution of problems of PLWHA. On the whole, these leaders and members will co-operate with the network, other NGOs and state agencies.
The capacity building of leaders of PLWHA, which enables them to help members of their local associations effectively, will in turn empower the network of leaders and PLWHA, which will help their organisation to be sustainable.
Strategy 2: Policy-Oriented Advocacy
To improve the quality of life of PLWHA it is necessary to have favourable policies from the political system at the national level. What is needed is a process that will allow those who are directly affected (PLWHA) to present their real problems and needs to the policy makers and to take part in the direction of the solutions. This should be done in close collaboration with all concerned state agencies and those organisations that are helping the less fortunate that the public sector cannot reach. This group should get together to analyse the problems and develop a system that corresponds to and effectively promotes solutions to the problems of HIV/AIDS. This will generate a system of ongoing standard level of care for PLWHA in the whole country.
Strategy 3: Promotion of HIV/AIDS Problems in Local Communities
HIV/AIDS is a sickness that infects human beings of all sexes, ages and occupations. No one is immune to the virus. PLWHA have may have a positive or negative effect on the community. Therefore, the community is an essential foundation in determining the direction that can both increase or decrease the problems. In the past, there were many ambiguities and misconceptions about HIV/AIDS. People in the communities received outdated information. Therefore, the recipients of this communication harboured a view or an attitude that did not cover all aspects the illness. They looked upon PLWHA with rejection and fear yet they were not aware of the risk behaviours that could cause HIV infections. The sharing of the latest knowledge and accurate information will promote a better understanding of the sickness. Community leaders or those who are respected by the community are the key people who can help all the others to minimise the adverse effects brought about by HIV/AIDS. When this activity is implemented, the leaders can continuously work on the prevention of HIV/AIDS in the communities.
Activities and Operational Process
Strategy 1: Empower local associations and the network in building capacity of people living with HIV/AIDS.Specific Objectives
Target Groups
Operational Process
Expectations
Follow-up
2. Training on Healthcare
Specific Objectives
Target Groups
Operational Process
Expectations
Follow-up
3. Training on Counselling
Specific Objectives
Target Groups
Operational Process
Expectations
Follow-up
Specific Objectives
Target Groups
Operational Process
Expectations
Follow-up
Specific Objectives
Target Groups
Operational Process
Expectations
Follow-up
Specific Objectives
Target Groups
Operational Process
Expectations
Follow-up
Strategy 2:
Policy-Oriented AdvocacySpecific Objectives
Target Groups
Operational Process
Expectations
Follow-up
Strategy 3
: Promotion of Prevention and Solution of AIDS Problems in Local CommunitiesSpecific Objectives
Target Groups
Operational Process
Expectations
Follow-up
Specific Objectives
Target Groups
Operational Process
Expectations
Follow-up
Specific Objectives
Target Groups
Operational Process
Expectations
Follow-up
Field visit to talk with community members and local associations of PLWHA.
Enquire information from centre for acceptance of complaints.
Palliative Care of Adults
CSC provides care to PLWHA who are in the terminal stage of AIDS. Some of them are sufficiently strong enough to help care for the helpless patients in their terminal stage of the illness. Most of the patients are poor and rejected and cannot stay with their families or in their communities anymore. CSC will admit only the patients that have been referred by social workers that belong to public hospitals or public welfare offices. This will ensure that state agencies get involved and are informed of the current situation. It is also a means to ensure that these patients are really poor and abandoned. Those who are admitted normally have CD4 counts lower than 200 and many of them have tuberculosis or have developed viral meningitis and are helpless.
CSC has accommodation for fifteen PLWHA and an intensive care unit with a capacity of 8 beds for the helpless terminal patients. PLWHA that still have physical strength help do the daily chores at the centre. CSC pays the PLWHA to do the laundry, clean the offices, cook the meals, sweep the floors, rake the grounds and care for the patients in the palliative care unit and the childcare centre. It also supports the PLWHA to take up handicraft activities, like batik making to earn additional income.
CSC can accommodate about 60 PLWHA. Most of the PLWHA stay inside the centre grounds while some with families stay outside in rented accommodation. Earlier, CSC purchased a health card for every patient at Baht 500 per year. This card allowed them to receive free medical treatment at the public hospitals for one year. However, the government has come up with a medical scheme for every Thai people, which replaces health card. At present, each Thai citizen pays only 30 Baht for each visit to hospital. This amount includes all diagnosis, medical treatment, x-ray, medicines, operations, etc. At the beginning, the government did not allow opportunistic infections and anti-retroviral to be included in this medical scheme. Through a joint effort in advocacy of local associations of PLWHA and their eastern network, the government has accepted to include opportunistic infections in this medical scheme. As for anti-retroviral medicines, the government has provided free medicines only to certain number of cases due its limited budget. However, it plans to cover all cases soon.
PLWHA who stay at the Centre take part in the prevention training by sharing their experience to trainees or visitors that come to CSC. This sharing is a valuable contribution to the prevention in that it helps trainees to get a better understanding and develop positive attitudes towards PLWHA. Those who have stayed at CSC for two weeks will be sent back to their homes and communities after receiving counselling and they are willing to go back. This will help them to reunite with their families, relatives, friends and communities.
Home for Orphaned Children with AIDS
Background
The children who are the victims of this AIDS epidemic pose serious problems to the Thai society and the Thai government does not have a clear policy or action on this issue. Some children infected with HIV became orphans when their fathers and mothers died of AIDS. Some are orphans because their relatives could not take care of the additional burden. Others are orphans because their relatives were reluctant or refused to take care of them. Consequently, they have no one to take care of them. They lack the love and warmth they would have received from their natural families. They do not have an opportunity to get an education. If these children grow up, they will certainly become a burden and may even become a critical problem to the society.
A childcare centre is set up to accommodate and care for children whose parents have died of AIDS or are PLWHA at CSC. Due to the serious problem of HIV infection, orphans who have lost their parents because of AIDS and who are also infected with the virus are referred to CSC because they are abandoned. The children with HIV/AIDS parents are accepted so that they will be able to live with their parents until their last day. This is one way to promote family atmosphere, which is helpful for psychological well being of the children. The front building of the Centre serves as accommodation and classrooms for AIDS orphans.
Experience Caring for HIV Orphans
CSC childcare centre now cares for 30 children. They are all from very poor families; some were rejected and/or abandoned when they were in the final stages of AIDS and eight of these children have died. The children are now all given medicine, especially anti-retroviral medicines to prolong their life. The anti-retroviral medicine is a gift of life. The children are quite weak and it is difficult for them to go to regular schools. They are provided with literacy classes so that when they grow up they will be able to read and write. These classes will also enable them to get a formal educational qualification that can be used to find jobs in the future.
Objectives
Our objectives are:
Target Groups
The target group for this project is for 30 orphaned children living with HIV/AIDS and/or children whose mothers are living with HIV/AIDS. Twenty-five of the children are HIV positive while five are children affected by AIDS.
Activities
1. Child CareCSC takes care of 30 children. Twenty-five children are HIV positive while four are children affected by AIDS.
Objectives
CSC provides the children with shelter and meals. Two baby sitters are assigned to take care of these children as nannies. The two are also HIV positive and so understand the pain that the children must endure. At the child care centre, the boys and girls have separate bedrooms and each is equipped with six beds. In the morning, the nannies wake the children up, ensure that they bathe and dress, and cook breakfast for them. To promote a family atmosphere, the children have their lunch and dinner in the CSC common dining room together with the adults who are living with HIV/AIDS. The nannies take care of the children again in the late afternoon from the time the children finish their classes until they go to bed. At night, they take care of any sick children; as many of them are weak because of the virus. They also take care of giving medicine that is prescribed by a part-time nurse and medical doctors to the children. Once a week, the nannies will conduct a check-up to monitor health conditions of each child.
The children are assigned domestic chores as part of their disciplinary formation. This is necessary to help the children feel at home, become self-sufficient, and develop a sense of responsibility, which will be beneficial to them when they grow up. Domestic chores are also necessary for the children to have physical exercise to keep them physically strong to counter their sickness.
Literacy Classes
Education is very essential in life. To lead a good life and survive in society one needs to get an appropriate education. Children affected with HIV have great difficulties getting an education. The parents of HIV positive children dare not take them to school. There may not even be a school that will enrol them. Some children began their studies but had to leave their schools because they developed AIDS symptoms. Although the children living here are HIV positive, they are still members of the society. Therefore, education is essential for their future life in society. Realising this need, CSC provides literacy classes for orphans with HIV. CSC provides the teachers and organises classes relevant to their health conditions and ages. We have adopted a child-centred approach so that the children will develop physically, mentally, intellectually and psychologically, and be ready to join formal education system as they grow up.
The objectives of the literacy classes are:
To provide physical and intellectual development
To prepare them for formal education in school system.
To provide the children with knowledge and capacity for application in daily life.
To produce responsible and productive adults.
Tutoring
CSC has four children living at the childcare centre who are quite strong. They live with their HIV positive mothers, and though infected by HIV, they attend classes in local schools. As persons living with HIV/AIDS, they are more susceptible to infection than other children so a tutor is made available for the to help with their homework assignments. Tuition is offered on an individual basis during the afternoon or in the evening.
Outings and Excursions
Children want to learn and they are curious to learn everything. Children with HIV do are physically weak and rejected by society. Staying within the confines of the Centre will hinder their psychological and social development. CSC endeavours to take the children out every week to visit parks, beaches, museums, shopping centres, and other places of interest. As an example, the teachers take the children to a supermarket and allow them to help choose their food, personal items like toothbrushes, candies, stationery, and so on. The children are also taken to the beaches that are not far away from the Centre to have fun. These activities help to broaden the children’s view of the world, develop positive attitudes towards life, and improve their physical, psychological and intellectual well being.
Medical Treatment
As most of the children living here are children living with HIV, many of them are physically weak and get sick very often. They need medicines to help them recover as soon as possible; otherwise their lives are gravely at risk. This is why the teachers and nannies have to be aware of the health of these children and closely monitor them. A part-time nurse also helps take care of their health. If necessary, they are taken to a local hospital for check-ups by medical doctors. CSC has a good relationship with the local public hospitals.
Being HIV positive, the children need regular blood tests for CD4 levels and viral load; the results of these tests dictate their anti-retroviral drug doses. These drugs are essential for the children to prolong their lives. Without the regular medicinal doses, it is most probable that they would develop AIDS symptoms much faster and have a shorter life span.
Volunteers regularly offer their time to CSC. Volunteers may be local people who will come to the child care centre of CSC regularly, one or two, or more days a week, but stay only for a few hours on each visit. The centre also has foreign volunteers who come for a short stay of a few months and help teach the children every day. The centre also has foreign volunteers who stay for one year or longer terms. The volunteers help to ensure that the children have their meals and take their medicine. They may teach some subjects or accompany the children in the activities held at the centre or in the neighbourhood. They also help take the children to local hospitals if they are sick, need medical attention or when they have their viral load checks. Other volunteers help in the palliative care unit by feeding the more debilitated PLWHA. They help to ensure that the PLWHA are afforded every opportunity to treated with human dignity.
CSC offers a counselling service to PLWHA and their families. Results of the counselling to date indicate that people that lived in conditions of poverty usually have a low level of education and exhibit behaviour that leads to drug addiction. When people become infected with HIV, they are abandoned by their families and ostracised by their communities. They usually have to quit their jobs and there is no place for them to stay or live. Most of them go into denial, do not believe the doctor and want to have a recheck by another doctor to see if they really are infected with the virus. Some of them try to escape from this fact and want to take revenge. Others slip into a state of depression because they cannot do the things they used to do in the past. They think no one understands them and that no one wants to take care of them. They are worried about their children and about work. Some contemplate suicide while others pin their hopes in medicines.
CSC will continue to offer a counselling service to PLWHA as well as their relatives with the following objectives:
Activities
The counsellor will advise those people who have had their blood checked and know that they have certainly been infected with the virus to stay with their families or community. They should be encouraged to lead their life as usual and lessen the social burden without staying in public or private convalescent homes. Being infected with HIV does not mean immediate death. Some people with HIV continue their work and live for several years. Some people cannot make up their mind to accepting the fact. They have not had a blood test or nor do they dare see a doctor for fear of knowing that they are HIV positive. It should be suggested that they have their blood tested. If they are not infected, they will be happy, but if they are infected, then they need medical care as prescribed by physician.
Most of relatives and concerned people ask how a PLWHA can stay in CSC, what they have to do and at what stage are PLWHA admitted into CSC. First, if the PLWHA do not develop complications, CSC would suggest that they stay with their families. If the PLWHA is hospitalised with complications and is rejected by the family, social workers in the hospital will recommend the PLWHA to contact CSC. CSC will admit PLWHA in their terminal stage and those who are homeless or rejected by their families, relatives and communities.
Indicators
- Four members could give counselling service.
- Three members could do a home visit.
- Three members could visit other groups.
CSC is fully aware that the program on HIV/AIDS is very important and needs to be carefully studied, planned, implemented, monitored and evaluated regularly. The staff members play a very crucial role in the success of this work. Therefore, they need ongoing training to build their capabilities. The best learning method is actual practice, participation in the work, the sharing of ideas, analysis of past experiences, monitoring the results and drawing of lessons from the work. CSC will provide the following capability building training for its staff members.
Objectives
Activities
Regular staff meetings are the most effective instruments of monitoring. Staff meetings are platforms where all concerned staff members come together to monitor progress of the work, identify problems and obstacles and search for relevant solutions. They also allow the staff to participate in planning, decision- making and evaluation of the work as a whole. Therefore, CSC will hold a meeting every week for staff members of each program. When necessary, a joint meeting of staff members will be held on specific topics.
There is a need for ongoing development and training to cope up with new situations and new developments. Members of the prevention team need additional training and development to build their capabilities for the work. It is necessary to provide some training to PLWHA to equip them with knowledge and skills needed for their work.
The subjects to be dealt with in each session will be on techniques and skills needed for their work, such as project proposal and report preparation, documentation, research, co-ordination and co-operation, network building, monitoring and evaluation, and training techniques. This in-service training programme will be held outside the centre to leave their routine jobs and workplace behind, so that they will be refreshed and are more prepared to learn new skills. Each session will be held at nearby location for a full day every month or more often as deem necessary.
CSC plans to organise a semi-annual evaluation session all its staff members. Ea